Rules of paranormal conduct 

I think ghosts probably find it hard to live up to Frances’s expectations… 😉

  

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Saying hello

Recently, for the first time, Frances has tried a few times to say hello to different people — which is fantastic.

The difficulty that she encounters is that she is not reading the cues: the person is on the phone, the person is too far away to hear, the person is in the midst of noisy traffic. Consequently, her attempts have been unsuccessful.

I’m really hoping that she does not become discouraged and that she continues to try on her own (i.e., without being prompted or coached).

Beddy-byes

I’ve written about how Frances’s sleeping problem has always been an issue, but not about the work Frances is doing with the occupational therapist.

We have been working a five-week plan that involves changing my sleeping space weekly: the first week, I slept on a mattress beside her bed, then, in the second, third and fourth weeks, the middle of the room followed by the doorway and the hallway. 

I am happy to say that I am now sleeping just inside my bedroom! Okay, maybe not happy, but I’m excited that we are in the fifth week.

With the exception of a couple really bad (read: meltdown) nights, it has been smooth-ish sailing.

Next week, I will return to my own comfy bed and Frances will be comfortably ensconced in her own bed — alone. This should mean that we will both get a good night’s sleep from now on.

Glasses update

 
When Frances was about four months old, our doctor informed me that Frances needed to see an ophthalmologist: her eyes were crossed (bilateral strabismus) and they weren’t straightening out on their own. 

Consequently, she got glasses at five months old. (It was quite a challenge to keep those glasses on her while she was a baby: she kept taking them off, and I was always nervous about the possibility that she would poke herself in the eye with one of the temples.)

At eighteen months, she had surgery on both eyes. (Unbelievably, she was not distraught in any way either during or after the operation.) Afterwards, for the first time in her life, she was able to see out of both eyes at the same time.

So, the surgery was very successful in that respect, especially considering that one pediatrician actually took ‘before’ photos of her after telling me that it was the most severe case of strabismus that he had ever seen.

Unfortunately, the surgery over-corrected one eye and that eye turns outward at times, especially when Frances is tired. 

On Tuesday, we learned that the doctor wants to correct the alignment, so Frances got yet another prescription…

Good balance

One of the great things about going to a children’s hospital that treats autism is that Frances is allowed to climb in the reception area. It makes waiting much easier for both of us.

Just before her occupational therapy appointment on Thursday, instead of asking Frances not to do it, her OT said: “That’s okay. Climbing is good.”

  

Progress

School mornings are difficult for Frances. They typically involve huge meltdowns and outright refusal to go to school. We do get her to school (where she does well throughout the day), but not without a great deal of effort to get her dressed, fed, and ready to leave the house.

Today, everything progressed in a predictable manner until there was sudden silence: I found her in the living room, rocking herself in a rocking chair. Ten minutes later, she was still rocking. Ordinarily, the meltdown would last until the teachers took over, but we stood a good chance of delivering her into their care without tears!

I ran up the stairs to tell Pink Cup Dad that he had to take her to school NOW while she was still so calm (and he did).

Now, I’m looking forward to seeing if the rocking chair works for her tomorrow as well.