Over the edge

Frances has a very dry sense of humour that appears at really funny times.

For example, every weekend, she and I have a sleepover: we usually camp out in a fort in the living room, watch a movie and eat popcorn.

Recently, my bed was the site of the sleepover, and I found myself often teetering on the edge about to fall off because she kept moving closer and pushing me. I even fell over once.

When I mentioned this to Frances, she simply said, “Well, they say if you love something, you should let it go.”

So, she was letting me go over the edge?

😂 

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O, sleep!

As I have written before, sleep has been a major issue for us. Recently, the biggest problem has been having Frances remain sleeping. (For some time, this had abated.)

Even while taking melatonin, she would awake two hours or so after falling asleep.

I’m happy to say that, as of this week, knock on wood, sleep has come to our house! There is still early rising, but I’ll gladly take that over late nights and very early mornings.

Renovating 

Frances drew a picture of the new bed that she wants for her new bedroom — I think that’s a turret in the top right section. And that’s definitely a slide in the bottom right.

 

Where hides sleep…

 
One of our main concerns is the issue of sleep. Despite her strict bedtime routine, sleep is difficult. (As in all things, predictability and knowing what to expect is key for our girl.) 

In fact, just about every ASD parent with whom I have spoken has said the same: bedtime is a big issue. (I write this after a particularly long night.)

Over the years, we have had great difficulty both in getting Frances to sleep and getting her to sleep through the night. It still takes many hours (up to five) though staying asleep has gradually become more manageable this year.

Falling asleep…

For many years, watching a documentary of her choosing has been a strict part of Frances’s bedtime routine. While watching documentaries may not be considered typical for either a child who has ASD or a child who does not, it is my understanding that the rigidity of routines can be. 

With this, I post an example of what a rigid routine could look like. As I’ve mentioned in other posts, in our case, Frances wakes, crying, in the middle of the night if she falls asleep before the documentary is over.

I’ve really enjoyed capturing these and other moments — many of our moments — through every age. In the following panel, she has just fallen asleep before the film’s end, and she is six years old.